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“In too many places, T1D is an invisible disease, not on the radar of the healthcare community and often diagnosed only when it's too late.”
- James Reid, Program Officer, Helmsley Charitable Trust
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“With type 1 diabetes once you get to the point where your body makes no insulin, you need insulin to survive, or you will die. The commonest cause of death for young people with diabetes globally is a lack of diagnosis right at the start.”
- Dr Graham Ogle, paediatric endocrinologist, General Manager, Life for a Child
5.2 healthy years restored
It is easy to ignore or misdiagnose the signs of type 1 diabetes until it is too late, as people with type 1 diabetes urgently need insulin to survive
In Malaysia, 6.7% of children who develop type 1 diabetes are never diagnosed.
But simple things, like a $1 educational poster can help make a diagnosis and save a life.
7.5 healthy years restored
Management of type 1 diabetes involves multiple daily injections and frequent monitoring
In Malaysia, 640 people are not alive today for the sake of a small vial of insulin and a tiny test strip.
Each extra test strip used can add 1 hours of healthy life.
Together we can change the story for people living with type 1 diabetes in Malaysia.
7.5 healthy years restored
Without devices, the average person with type 1 diabetes spends 18 days a year managing the condition
Devices like pumps and CGMs reduce the work of managing type 1 diabetes.
CGM sensors are usually replaced twice a month. Every time it restores 52.1 hours of healthy life to the average person in Malaysia with type 1 diabetes
Together we can change the story for people living with type 1 diabetes in Malaysia.
full life expectancy restored
Research works—In the last 50 years of progress
25 years have been added to the lifespan of a person receiving the latest care.
We are working to make T1D a thing of the past.
One day we will discover how to restore the body's ability to make insulin again—eradicating T1D
Help us turn type 1 into type none through impactful research.
'People who should still be alive today' are people who would still be alive if they had not died young due to T1D
'Healthy years of life lost' is an estimate of how much time the average person who develops T1D loses over their lifetime. It includes time invested in treatment, a percentage deduction for any years lived with disabilities, and time lost to shortened lives. It's similar to the DALY metric.
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'Healthy years of life lost' is an estimate of how much time the average person who develops T1D loses over their lifetime. It includes time invested in treatment, a percentage deduction for any years lived with disabilities, and time lost to shortened lives. It's similar to the DALY metric.
Here's a quick breakdown of those factors for Malaysia and its leading peers (i.e. top 25% of countries in the same income group):
| Malaysia | Leading peers | |
|---|---|---|
| Treatment/care | 2.1 years | 1.6 years |
| Complications | 6.1 years | 4.6 years |
| Shorter life | 25.1 years | 21.7 years |
| Cost of care | TBD* | TBD* |
| Mental health | TBD* | TBD* |
| Quality of life | TBD* | TBD* |
| Healthy years stolen | 33.3 years | 29.1 years |
| Remaining healthy years | 44.1 years | 46.9 years |
In Malaysia an unknown number of young people are never diagnosed. Globally we estimate 36,000 are lost to T1D each year without ever receiving a diagnosis.
But simple things like a $1 educational poster can help make a diagnosis and save a life.
In Malaysia we believe most people have access to insulin and strips. For those who do not, every extra strip used can add 1.1 hours of healthy life.