Type 1 diabetes (T1D) is a lifelong chronic illness. It can be managed, but only with the right tools and care. Research will help find a cure, but for many around the world diagnosis is still a death sentence.
The T1D Index highlights for the first time the true scale and human cost of type 1 diabetes around the world. What we can measure we can change.
Sign up to be notified when the T1D Index is live and to get e-mail updates about how to support global action on T1D.
The Index provides the first ever comprehensive global picture of type 1 diabetes. It shows the size and growth of T1D for every country around the world - how many people have it, where they live, how old they are, and how this is changing over time as more are diagnosed every day. It also measures the time (in lives, days, and futures) stolen by type 1 diabetes and its complications, and highlights what it will take to win it back.
For every two people alive with type 1 diabetes, there is a third for whom diagnosis was a death sentence. Using global diabetes data, the T1D Index estimates “ghost populations” - the shocking number of people who should be alive today with better access to care, but aren’t.
For every five days a person lives with T1D, two days are stolen by the condition. The minutes of every hour spent monitoring and treating. The days of every week spent working to afford the cost of care. The weeks of every year lost to complications and disability.
T1D is one of the fastest-growing chronic illnesses on the planet. The T1D Index shows that the number of people impacted by T1D is expected to more than double by 2040. Although it is most commonly diagnosed in children, anyone can be diagnosed at any age. If T1D isn’t in your family’s life now, it may be in the future.
The T1D Index will help bring global attention to T1D and demand investment to save and improve lives. The T1D Index data is the evidence, but the diabetes community must drive and demand the action that the T1D Index proves is so necessary.
The lives, days, and futures lost to T1D have never been measured in this way and at this scale before. The T1D Index provides a rare opportunity to drive action, pointing to the specific ways that support will make immediate and measurable change.
If you want to help, sign up to be notified when the T1D Index is live and to get e-mail updates about how to support global action on T1D.
Type 1 diabetes (T1D) is a chronic autoimmune condition that makes the body unable to produce insulin, the hormone that helps process blood sugar. Without insulin, our bodies cannot use the sugar in our bloodstream as energy. T1D can be managed with regular blood sugar testing and the injection or infusion of insulin, but is deadly without ongoing daily medication and management. T1D impacts people of all ages in all parts of the world.
The T1D Index is a simulation of the extent and impact of T1D in every country in the world. Building the Index required combining every available piece of data into an advanced model, and adding expert input and validation to capture a comprehensive global picture of T1D and its burden. The picture has brought clarity to some issues and reinforced our need for more and better data to continue honing this tool. The Index is always being honed and improved - if you have data or expertise in T1D presence or impact in a specific country, please share it.
From launch, the T1D Index will show the cost of diabetes with data on prevalence, lives lost, and the burden of complications and disability. In future releases, the T1D Index will expand to measure T1D’s impact via the direct economic costs, the impact of quality of care, and its toll on mental health and quality of life. The underlying model will be updated with any new and more accurate information that we can get, to keep the T1D Index the most accurate, comprehensive picture of T1D around the world.
If you have data that may assist the T1D Index, let us know and sign up to be involved in future model development.
How can I get involved?